Rare Disease Advocacy

Helping to Find Your Voice.

Find strength and connection. Led by a patient advocate and coach, the program offers inspiration, support, and practical tools to navigate the journey with resilience and achieve goals. A portion of fees supports The Conley Cushing's Disease Fund.

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Advocacy and Guidance: Tools for Your Journey

A patient advocate, speaker, and coach, Marie leverages her unique experience to empower those with rare diseases. Find inspiration, connection, and support to navigate your journey with resilience and achieve your goals. A portion of all fees supports The Conley Cushing's Disease Fund.

Patient Storyteller/Keynote Speaker

Marie uses humor and resilience to share her personal journey with a rare disease. She highlights the importance of service and what truly matters. Her inspiring talks motivate and empower others and reminds them of what is "Cushing's point-worthy©."

Career Compass
for Rare Disease Thrivers

This personalized program understands the unique career challenges faced by those with rare diseases. As a certified coach, she provides tailored guidance, helping individuals explore new paths, seek accommodations, or pursue entrepreneurship.

Patient Panel Facilitation

As a patient herself, Marie expertly guides patient panels, fostering open communication and shared experiences. These safe spaces allow patients to connect, learn, and support one another.

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Beyond Support:
Find Empowerment & Connection

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Marie's Rare Disease Expertise

Living with a rare disease herself, Marie offers a deep understanding of the community's challenges and opportunities.

Proven Advocate & Leader

Marie's dedication to positive change is evident through her advocacy work and leadership roles.

Patient-Centered Approach

We prioritize your individual needs and experiences, ensuring a supportive and impactful program.

Building Patient Voices

We empower patients to share their stories and advocate for their communities.

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